"The tools Bede has fought with isn’t necessarily this arsenal of meds but the love that we give him and that he gives us," Darch said. "We always say his life is a miracle of medicine and love because they’ve fought hand-in-hand."
"He’s such a joyful little kid," Bickmore said as she fought back tears. "The hours that I’ve been here and seeing him with his brother — their heads so close together. It’s like their happy space."
The parents went on to speak about their day-to-day life and what it involves to care for Bede, which has become so demanding Roy lost his job.
"Some days he just screams," Roy told Bickmore. "All day long, 23 hours a day. He wasn't in control of his body or the agitation that he had. And all we could do was hold him."
"We had a choice," continued Isabella. "We could cry and grieve and that's Bede's experience of his life, or we sing and we play and we laugh and we joke and that's his experience of the world."
Bede's mother made headlines back in April when she wrote a controversial blog post in which she confessed that she wanted her son to die.
"It's horrible feeling so much love for someone and at the same time wishing that it could all be over for them," said Isabella, also fighting back the tears.
After the piece had aired, the TV host added, "I think for all the people who had an opinion and judgement after that post she wrote, until you've walked in someone's shoes ..."
A GoFundMe page which had been set up to help cover the costs of Bede’s therapy had $36,000 in donations, and since the segment aired it now has over $223,000.
"Project viewers you are an incredibly generous bunch," Bickmore tweeted after the show. "Thank you".