Chris Gard and Connie Yates have been fighting for permission to fly their ill child from the UK to the US to undergo experimental treatment.
They started a GoFundMe page on to raise money for the travel expenses and medical costs, hitting their target of $2.2m AUD, however, the courts ruled that transporting Charlie across countries would only lead to further suffering.
Now, in a statement delivered to press outside the UK High Court, father Chris Gard said “too much time has been wasted” and that Charlie’s illness has deteriorated “to the point of no return.”
“There is one simple reason why treatment cannot now go ahead," the heartbroken father said.
"We are now in July and our poor boy has been left to lie in hospital for months without any treatment while lengthy court battles have been fought."
"Had Charlie been given the treatment sooner he would have had the potential to be a normal healthy little boy.”
“We are now going to spend our last precious moments with our son Charlie, who unfortunately won’t make his first birthday in just under two weeks,” he said.
“To Charlie, we say from Mummy and Daddy we love you so much. We always have and we always will and we are so sorry we couldn’t save you.”
“Despite his condition in January, Charlie’s muscles were in pretty good shape and he was far from showing catastrophic irreversible structural brain damage. Charlie’s been left with his illness to deteriorate, devastatingly, to the point of no return,” Chris continued.
“Our son is an absolute warrior. His body heart and soul may soon be gone but his spirit will live on for eternity and it will make a difference to people’s lives for years to come. We will make sure of that."