Last year, Amy Schumer welcomed her first child into the world. However the birth was fraught with difficulties due to her endometriosis and she underwent a C-section at 39 weeks.
At the time of her pregnancy, Amy called out the lack of funding for endometriosis research on social media saying:
"Amy is still pregnant and puking because money rarely goes to medical studies for women such as hyperemesis or endometriosis and instead goes to things like dicks not getting hard enough or old guys who want harder dicks."
In 2018, singer Halsey delivered a powerful speech about her personal endometriosis diagnosis after having an unexpected miscarriage when she was pregnant without knowing. Halsey implored other women struggling with chronic illnesses to "keep fucking fighting."
After tolerating unbearable period pain for years, Australian creative entrepreneur Samantha Wills was referred to an obstetrician-gynecologist. The specialist discovered two fibroids (growths on the uterus) and Samantha underwent surgery to remove stage 4 overgrown endometriosis.
Her advice for other women who may be suffering from the disease?
"The body is always talking to us. It whispers first, then it gets fed up with our obnoxiousness and is left with no option but to scream at us... No matter how insignificant it may seem, IF YOU'VE BEEN WAITING FOR A SIGN to go and get it checked out, this is it," the designer shared in an Instagram post.
Bringing some dark humour to her endometriosis diagnosis, Alexa Chung joked back in 2019: “I don’t want to belong to any club that would accept me as a member, but here I am."
For Endometriosis Awareness Month in 2020, the British model took to Instagram to call for more funding for research saying:
"Why don’t they know what it is? Why don’t they know how to cure it? Could it be to do with a gender healthcare bias? Also probably doesn’t help that 'endometriosis' is the longest and most boring word to read."
Speaking with marie claire about her personal experience with endometriosis, Creative Director and Co-Owner of Australian fashion brand Sabo Skirt, Thessy Batsinilas said:
"Living with endometriosis has been a big life lesson for me. I’ve learnt that if something doesn’t feel right, it probably isn’t. I have learnt not to take no' for an answer. I’ve learnt to live with a painful disease and push my physical and emotional threshold - I’ve learnt that living with endo has made me stronger, not weaker. When I woke up from surgery and got told that a lot of my reproductive organs were removed due to the severity of my endo, I learnt that I was completely infertile. I learnt that women who endure IVF are stronger and more determined than they’ll ever know. I’ve learnt that through all of this, the biggest miracle of all is my daughter."
In 2018, Girls star Lena Dunham was forced to make the difficult decision to undergo a hysterectomy due to acute endometriosis. She was just 31 years-of-age at the time.
In an essay for Vogue US, Lena detailed her “years of complex surgeries measuring in the double digits” that ultimately resulted in her opting to have her cervix and uterus removed as a last resort.
Top Chef host Padma Lakshmi aptly summed up the experience many women have with endometriosis describing it as a "chronic illness in which tissue that normally lines the inside of your uterus, grows outside of it, strangling your internal organs" on Instagram.
In 2018, Australian performer Emma Watkins, AKA the much-adored yellow-skivvied member of The Wiggles, released a video statement over Facebook when she had to withdraw from a tour due to needing to have an urgent operation for her endometriosis.
“I would like to send my love to all the other women experiencing symptoms of endometriosis. It is such a debilitating and painful disease and I urge anyone suffering with symptoms of endometriosis to put your health first and get a diagnosis so that you are in the best position to manage this crippling disease," Emma wrote in a written statement accompanying the video.
Olivia Culpo got candid about her personal health struggles via her Instagram Stories. The 28-year-old model shared on her experience with "the most excruciatingly painful cramps/periods," telling fans for the first time that she has endometriosis.
"I've never publicly said this before but I have endometriosis," she wrote. "Anyone else reading this have Endo? No fun."
After receiving so many messages from fans who also suffered from endometriosis, Culpo said: "If you are having very painful periods and you are not being diagnosed with what you think could be endometriosis, definitely do your research because if you don't discover that you have this, it could get in the way of your fertility. You could have tissue growing in areas that you really shouldn't have that would interfere with maybe getting pregnant someday, your eggs could be getting damaged."
For more information or support visit Endometriosis Australia.